About This Blog

This blog came about in 2010 when I had to have toe surgery. I had a journey to write about so I set it up. Now in 2016 I found out that I have a congenital heart defect and that I will require open heart surgery to correct it.

I'm using this blog as a way to offload my crazy brain into a format that I can share with my friends if they are interested in reading it, and also to document my journey so that I can read it in the future and laugh about it :)

Fair warning: My blog posts are mostly a uninteresting, unintelligible mix of disorganized thoughts.

I love comments and shares so please feel free to interact!

Follow me on Twitter and Instagram @srphayre if you like photos of sunrises and sunsets.
Showing posts with label plush toy. Show all posts
Showing posts with label plush toy. Show all posts

Monday, December 5, 2016

This day next week... (oh and Screw You Blogger App!!)

Before going any further, I want to say that I now *hate* the Blogger app (Android) with the passion of a thousand suns. I've just spent the past 1.5 hours typing up a witty and award-worthy blog post about the goings on of today, and just as I was putting the finishing touches to it, the app ate it all up and spat it out in my face.  I'm going to try go recreate the post to the best of my abilities, it will probably be not nearly as awesome as my original post, so you will have to artificially add a few extra globules of cool-sauce to it and imagine how nice it would have been to read the non-replicated junk that follows.




So today was a bit rough for me. Not rough as in painful, or discouraging, or anything like that (with the exception of the aforementioned blog post being eaten) [Am I allowed to bring that up if I'm trying to recreate the original post?? Heck, it's my blog I can do whatever I want!]. No, today was 'tender'.  Let me explain.


Today I had 4 heart-related activities that needed to be accomplished.  One was a simple form that needed to be signed at the surgeons office giving them permission to share medical information with the company that manages Medical Leave of Absences for my employer.  That's a no-brainer because without that signed, they wouldn't share the info and the FMLA folks wouldn't process my claim to be paid while I'm recovering!! 


Another activity that I completed today was a call to my health insurance company to confirm that all of the providers that will be working with me are covered fully "in network" by my plan.  I was assured that the hospital itself and the surgeon and his team are covered by my plan but that I should take extra precaution to find out who the anesthesiologist will be and pre-screen them because many people get caught out with a large "out of network" bill that has no agreed pricing and the doctor can come after you for any differences between the covered amount and the actual charge.  I called the hospital and they let me know that they us a local provider for all of their anesthesiology needs and recommended that I call them.  When I called them, they assured me that they are fully in network for my insurance provider.  This was all good news and somewhat of a relief to know that it is fully covered.  Someday maybe I will write a blog post about the cost of all of this stuff (it's astronomical) and I'm incredibly lucky that my employers have wonderful benefits and that the entire debacle from the event in Vegas to the surgery next week will cost me no more than $1500 in total out of pocket expenses.

Next up was a 'pre-operative pre-admission" thing a the hospital itself, where we got all the paperwork out of the way now, so as not to have to deal with that on the day of the surgery. This also included taking some 'vitals', a couple of chest x-rays, an EKG (on a side note, am I the only one that is bothered by the fact that it takes 5 times as long to get the clips and probes in place as it does to do the actual test??  Figure it out people!!), some blood draws for various things including typing and cross-matching me in the event that I need blood transfusions during the surgery, and a nasal swab to test for MRSA colonization (MRSA + heart surgery = bad).


After that, the final chapter of today's hospital activities was a visit with the Occupational Therapist to discuss various elements of my post-surgery recovery. We were greeted by a soft spoken lady name Sue who was very pleasant.  Sue asked various questions our house and my recovery team (i.e. who will be around me when I return home and what type of obstacles will exists there).  She wanted to find out out if we had stairs in the house, how many steps up to the front door, what type of shower we had (to see if I could easily get in and out). Nothing out of the ordinary.  Sue went on to demonstrate various activities that I will need to be cautious doing during my 4 - 6 week 'sternal precautions' time.  These included sitting and standing from a chair, getting in and out of bed, and the reaching/grabbing/lifting/pushing/coughing limitations that I will have during that time. She explained that the time frame for 'sternal precautions' will be determined by the occupational and physical therapists that are assigned to me at the time.  We covered return to work expectations and a better insight into things like not being able to drive during that time and things that I will become used to over the coming weeks (like ways to easily get comfortable i the bed).




I was also introduced to my new heart pillow from the hospital (not to be confused with Pumpy) which will be used during the aforementioned activities during the 'sternal precautions' time. This pillow (which is pretend heart shaped similar to the one on the right) is held against the chest to provide additional support to he healing sternum.  Apparently the pillow even has a handy strap for taking with me wherever I go.  There were some very strict instructions in the use of this pillow with dire warnings for not using it (or using it incorrectly).


Sue also covered some of the other elements of post-surgery life at the hospital including a fair warning that I won't get much sleep in the first few days with all of the nurses checking vitals, running tests, getting me to go between bed and chair, taking me on walks etc. She noted that the Occupational Therapist and the Physical Therapist assigned to me will set some goals during the recovery, and meeting these goals will be critical to my discharge from the hospital.  One of those goals will be for me to take a shower.  I was surprised to hear that the first shower that I take after surgery will also include my wife and the occupational therapist in the shower with me!!  It seems somewhat unfair (but understandable I suppose) that I will be the only person actually without clothing but I was assured that my "personal privacy" will be maintained to the best of their ability...  Sue noted that most people are so happy to be actually having a shower that they don't really care who will be in the room with them.


So all of these proceedings went down without a hitch.  The hospital events were very efficient and all of the staff were their usual friendly selves. So why does today feel tender?  I think it is a mix of a few things, not the least of which is that this day next week is the day of the surgery.  In fact, this time (11:30pm) next week, I should be well into my recovery, maybe already out of bed, breathing on my own, been seen by my family and being taken care of by a group of highly trained professionals who have my health as their number one priority!


Maybe it's the "being at the hospital" today and seeing patients being wheeled around, and visitors coming and going, that makes the surgery that seems so far away that much more real and happening.  I am reminded by a great scene in a great movie that I wanted to share with you I'm feeling right about now. Skip to 1:23 into the clip for the reference:




That's right... It's Happening Reg!! It's no longer something that's way off in the distance but something that's happening "next Monday"!!  I'm really excited about the restorative power that this surgery is going to have.  I'm feeling overwhelmed by the wonderful family and friends who are pulling out all the stops to help us get through this. I'm keenly aware of the fact that not having this surgery would ultimately result in my early departure from this world. I understand that it's better to get this sorted sooner rather than later. I know these things to be true, but this evening I'm still a little tender. 

I'm going to try to sleep it off and take Tuesday by the horns.

Monday, November 28, 2016

Pumpy and a Better Blog Than Mine

A couple of weeks ago, while I was trying to process all of this crazy heart surgery stuff, a gift arrived in the mail.  This little guy is a "realistic" heart plush toy!!!  I think that is he is adorable!  I posted a photo to Facebook but nobody owned up to sending him to me. 

My kids asked me what his name was (which I hadn't really thought about) so I named him "Pumpy".  Too literal?  Probably but I liked it so it has stuck.


Pumpy the plush toy!



He's made by http://iheartguts.com/ and they have a huge array of toys, and gizmos for a ton of different organs.

My personal favorites are the tonsil and the colon!  How awesome is that???

I can think of a bunch of people that could use a plush toy of their offending body part!!

I also bought some button badges and a heart key-ring for myself (arriving soon).




Plush toys arriving from an unknown source would probably not be something that I would normally have shrugged and said "that's awesome" except that I have so many wonderful friends that might have sent him alone out of the goodness of their hearts!  I wasn't even really in search of the sender - just a little curious.  Just a couple of days ago, on of my best friends messaged me and asked if I had figured out who sent the push toy and followed the question up with a 😜 HaHa!  Yes I had my sender.  My buddy told me that he had seen a the toy on a blog that he had been recently reading and couldn't resist sending me one.  I *had* to ask more about this blog, so he explained that it was about a young scientist who found out that she had a congenital heart defect and required open heart surgery to have it corrected.  Of course, I got the name and started reading!

I have to say that my blog is mostly just random crap that is floating around my brain, but https://defectiveheartgirlproblems.wordpress.com is the work of a very clever and funny lady (Summer) who approached her surgery in a not-too-dissimilar way that I am.  She did a lot of research, learned about the options, asked lots of questions and blogged her journey along the way.  It was a fascinating read for someone of a similar age (ok she's 5 years younger) facing down a similar surgical procedure.  Reading about the run-up to her surgery is eerily familiar to my current situation and following her through the procedure, recovery, return to the civilization and the on-going challenges of dealing in a post-operative world.

There were a few bits and bobs that she shared that I have been dwelling on (more like noodling on).  One thing that she said was that she was going "science the shit" out of her experience by learning as much as she could about it and applying her scientific methods and understanding to each step in the journey.  The funny thing is that I had only just recently said to my wife that we needed to "project manage the shit" out of my op and recovery (and about how what assistance we'll need around the house, with the kids, etc). 

Something else she mentioned that she was "fucking pissed" at her heart; that her heart had violated the trust that she had placed in it all of her life to keep her alive. In her case, her heart was slowly getting worse but she had absolutely no symptoms so she didn't have a clue that there was anything wrong (beyond being told that the had a heart murmur in the past).  I had never really given much thought to my heart beyond just being a body part, but something at which I could have a semi-disconnected emotion towards.  But I totally get what she was saying.  

In her case, while the surgery was successful, she had some serious pain issues post-operatively and then was hit with PTSD a year and a half later, probably related to how clinical her approach to her situation had been which failed to fully embrace the emotional elements along the way. The emotional roller-coaster that she experienced ended up changing the course of her life and even made her rethink pursuing a PhD. 

Summer's blog really reinforced my own thoughts and feelings about the procedure and I'm hoping to learn from her experience and really attempt to address the emotional side at the same time as the medical/physical side.  In fact, a few weeks ago, I engaged a therapist to talk through my emotions with.  So far we've had some good sessions.  Being Irish, the idea of "getting a therapist" seemed counter-cultural.  Therapists are something in Hollywood movies (who always seem to hook up with their patients after the first visit). Seemed like a good idea to me!! When I told her that my Mother had indicated some concern that I would end up in an affair, she laughed and said she had a policy of no romantic or physical relationships with her patients!!